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PREDNISOLONE Options
rosie1157
#1 Posted : Saturday, January 22, 2011 7:32:17 PM Quote
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Joined: 9/30/2010
Posts: 55
Location: St. George, Bristol
Hi

Can anyone give me any advice about taking Prednisolone. I have been diagnosed with RA about 3 months ago. I have ben taking Sulfasalazine, Methotrexate and Meloxicam.

Also take omeprazole as stomach protector and propanalol for migraine. Consultant wants me to stop taking Meloicam and start taking 7.5mg Prednisolone daily. The list of possible side effects is frightening. Is anyone taking this steroid that can help me

Thanks

Rosie
Rosie
jenni_b
#2 Posted : Saturday, January 22, 2011 8:19:26 PM Quote
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Location: nr Southampton
Hi

Have taken shed loads of it over many yrs.

Basically, people only prescribe short bursts of it until the RA is controlled. the rheummy is giving it to you to help while the other drugs start working on the RA.

It really is a wonder drug, you will feel much better really quickly.

They know this drug very well, it is a symptom controller not a disease controller so you will need to carry on on the DMARDs at the same time.

I have had prbs with it after many yrs heavy use.

7.5 is a titchy dose.

Jenni x
how to be a velvet bulldoser
LynW
#3 Posted : Sunday, January 23, 2011 3:43:55 PM Quote
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Location: Thornton Cleveleys
Hi Rosie

Pleased to hear that you have been offered prednisolone, it really will give you a break from the symptoms of RA and chance for your body to recover. However as Jenni says it is a short term measure and will only control symptoms of inflammation, pain, fatigue, it will not control the RA.

I have taken prednisolone in various amounts constantly since I was diagnosed 22+years ago (that was the treatment back then!) and am currently on a 3mg maintenance dose. There are lots of side effects but for a short period of 7.5mg you shouldn't experience problems (your appetite may increase though!). Like Jenni, I have experienced problems due to long term use and a couple of years ago had to have the lenses in each eye replaced due to steroid damage ... that said I can now see without contacts!! A blessing in disguise ThumpUp

You are on a good combination of treatment. Hope it works well for you Smile

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

rosie1157
#4 Posted : Sunday, January 23, 2011 9:23:12 PM Quote
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Joined: 9/30/2010
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Location: St. George, Bristol
Hi Lyn & Jenni

Thanks for your responses, it is reassuring to know that this drug has worked for you both. I will continue taking it and
hopefully will reap the benefits. This is all so new to me and all I seem to be doing is popping pills like sweets.

My consultant is arranging some physio for me and rheummy nurses at BRI in Bristol are first class.

I'll make sure I eat sensibly - dont want to gain weight really.

Thanks again for your advice.

Love Rosie xx
Rosie
rosie1157
#5 Posted : Wednesday, January 26, 2011 10:54:02 PM Quote
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Location: St. George, Bristol
Hi

I've been taking Prednisalone for just 1 week now and feel really unwell. I have felt sick since I started on these meds and the pain
smack in between my eyes/forehead is driving me nuts. Today when I went to take the meds I felt a real aversion to them
and every inch of me was rebelling against them - so I listened to my body and have decided against the steroids.

I previously had injection with no ill effects buty tablet form is a no go for me. I have suffered with migraine for 40+ years and really dont
want persistent head pain back in my life. So now I feel a failure!! just wallowing in self pity cos I feel so crap. Spoke to my rheummy nurse
and she agreed I should stop taking them - slowly!

Anyone else out there have problems with tablet form??

RosieThumbDown
Rosie
Rose-B
#6 Posted : Thursday, January 27, 2011 10:44:51 AM Quote
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Joined: 4/20/2010
Posts: 1,749
Location: Somerset


Hello Rosie


Dont feel a failure all these drugs have diff effects of us all. I was also on them
over the past month and yes they did help the pain and swelling but like you I
had really bad heads. So I have had another injections as well.

I hope to start Feb on humira so I am hoping for good things to happen.

Chin up my dear


Rose
smith-j
#7 Posted : Thursday, January 27, 2011 3:33:24 PM Quote
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Rosie

Don't beat yourself up about not taking the steriod tablets. Unfortunately we are all unique and what works for one does not necessarily work for another. You are being very sensible in listening to your body. It really is trial and error with this disease and you will find something which suits you.

Take care

Jackie
xx
brendab
#8 Posted : Friday, January 28, 2011 7:59:29 AM Quote
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Posts: 62
Hi Rosie

I have been on steroids since I was diagnosed in 2007 and presently take 5mg daily. I saw my rheumy on Friday and he said I really must come off them. He suggested I cut down 1mg every 3 months to give my body time to adjust. I understand it can be quite hard to come off them so perhaps it's a good thing in the long run that you don't get started. As the others have said, it doesn't control the RA but just covers the symptoms.

Good luck - Brenda
clive_mont
#9 Posted : Monday, February 14, 2011 2:22:32 PM Quote
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Posts: 21
Hello Rosie,
I was surprised to hear they want to put you on steroids. I have been on them for over 10 years and have been trying to stop them for over half of that time. My Rheumatologist keeps telling me they should never have started me on them as once you are on them they are hard, if not impossible, to stop. Also while they help with pain they are not the be all and end all. With me they have been blamed on my loss of strength I have difficulty doing nearly everything which needs a bit of strength. I have to ask my wife to open virtually any bottle or tin. They also thin down the walls of the veins and I also find small blood vessels break leaving me with purple patches on my arms and hands.
Meloxicam is probably not strong enough it is usually an anti inflamatory used in the begining of the disease and now there are far better ones as the disease progresses.
Hope this is of some help.
Clive
jenni_b
#10 Posted : Monday, February 14, 2011 4:56:08 PM Quote
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Posts: 2,237
Location: nr Southampton
steroids are a last resort. despite their serious side effects sometimes they are the only option. Life savers often.
i have a friend who has migranes, it turned out she has a benign cist on her pituatory gland. It does cause differences in her hormonal pattern especially so when pregnant- when you make lots of natural steroid. Interesting eh?
how to be a velvet bulldoser
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